Public speaking links

I am a member of the YARR Speakers Bureau at the EveryLife Foundation with a passion for patient advocacy and representation in the rare disease space. I also enjoy speaking out to share my personal experiences and knowledge as a media professional, disability advocate, and lifelong rare disease patient. I am especially passionate about the intersections of rare disease healthcare with mental health care and gender-affirming care.

The Neurological Disorder Podcast - Here's a Warrior: Neurological Perspective to Ehlers-Danlos Syndrome ft. Carter Hemion

Our Odyssey - "Advocating for Yourself in the Healthcare System" (June 2023)

iCan Presents - Ask the Experts: "Advocacy Through Writing" (January 2023)

Guest on Two Mics, One Joe Sooch (August 2022)

Also on Anchor: https://anchor.fm/twomicsonejoesooch/episodes/Non-Binary--Transgendered-Advocate-with-3-rare-diseases-Cervical-dystonia--Ehler-Danlos-Syndrome-and-Meneires-disease-e1irseb/a-a7vibq9

Also on Spotify: https://open.spotify.com/episode/1j1btfsgXUkQb1fh7Bm2To?si=X_4eWgvCQN-GHeyJB7BGTQ

Excerpt from YARR Summer Series (July 2022)

"Accelerated Approval and the Breakthrough Therapy Designation" for YARR Summer Series (July 2022)

"How to fight back against shame and stigma" on Now or Never, CBC Radio One (October 2021)

On CBC: https://www.cbc.ca/radio/nowornever/how-to-fight-back-against-shame-and-stigma-1.6208177

Transcript here: https://www.cbc.ca/radio/nowornever/october-14-episode-transcript-1.6209761