MY STORY

I grew up in the Pacific Northwest where I found a passion for writing as a teenager and have been doing art my whole life. I cherish growing and working with other creatives and advocates and love taking on new projects when I have the capacity. My work is highly influenced by my experiences with queerness, madness, and disability. 

 

When I was 20, I learned I was born with classical Ehlers-Danlos syndrome which caused me to develop a handful of its comorbidities. I am a rare disease advocate and proud to work alongside a vibrant patient community. I advocate for cEDS and its comorbidities at a federal level through writing articles, public speaking, meeting with legislators, and collaborating with other rare disease advocates. I also care deeply about destigmatizing mental health and following the lead of individuals with more marginalized and stigmatized experiences.

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I built this website to compile and showcase my work as a writer, speaker, artist, and rare disease advocate. Find my portfolios, projects, and other creations across my website.

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Thank you for visiting, and I'm excited to connect with you!